You may not realize what a HUGE deal this is, but Christian asked for a doctor on Monday evening.  On his own.  Using words.  And then proceeded to poke around at his neck and ears.


Not awesome that he wasn’t feeling well, but SO AWESOME that HE asked to go to the appropriate person who could help him even though he has been scared to go there in the past.  (He’s not a fan of shots.  Who can blame him?)

Tuesday, Christian and I went to the doctor.  (Yeah, Mamas apparently get strep, too. 😦  Yay for meds! )  He wasn’t overly happy about going when it was finally time for our appointment, but he came.  And listened fantastically well!  And anticipated what was going to happen next.  (Like when he saw the doctor with the “ear light” and he took off his headphones so that she could look before we even had to ask him, too! 😀 )  If I hadn’t been SO sick at the time, I would have totally happy danced right there in the examining room!!!  [Feel free to envision that. 😉 ]

And guess what, he needed antibiotics, and we opted for oral meds instead of the usual injection, and Christian is taking the meds amazingly.  [insert a look of happy shock here]  He just needs a chocolate chaser, but really, who doesn’t after taking liquid antibiotics???

I am SO proud of my boy.  Way to go, Christian!!! 🙂


Our basement has become the “dumping ground” this week.  After a record number of clean-ups on Tuesday and an over-snuggly day on Wednesday, we decided that Christian needed to see the doctor to rule out another UTI.  Thankfully (because of a 1/2-day of school on Thurs.), I was able to schedule an appointment for right after school.  Christian’s turned into a pro at peeing into the “hat” at the office.  🙂  Unfortunately, the fast results read negative, however, because he was showing symptoms similar to the last 2 times that he had a UTI, the doc decided to shoot him up with the antibiotic anyway.  Christian’s a trooper.  He was NOT happy about the shots, but gave the nurses high-fives as we left the office.  What a guy.  😉 

Too bad the antibiotic hasn’t been slowing down the bathroom issue.  Friday was at least 10 basement clean-ups (Christian didn’t have school).  Saturday — 5.  Today (so far) — 2.  Sigh.  I guess the number is decreasing, but I’d rather have it at a complete zero.  You know?!?

Liv has been testing Christian’s patience this week.  Constantly being right in the midst of what he is working on.  Wanting to do what he’s doing as soon as he starts doing it even if it’s something that she normally doesn’t care to do.  I guess that’s what little sisters do, huh???  So, Liv has been acting like a typical 3-year-old little sister and Christian is pretty frustrated with her right now…

I’ve been working on a new communication board for Christian.  Since he’s reading SO well and his PECS are kind of bulky to carry around, I printed off a bunch of words, stuck them to magnetic strips, and put them on a small magnetic dry erase board.  He hasn’t taken to it yet, but its new.  He does like the magnetic words, though, because he knows them and can read them.  I figure with the board being dry erase, too, we can just write a word on it if we don’t have it on a magnet.  I’m hoping it will be slick.  🙂  eventually…

Saturday — we braved the Agricultural Expo at the local fairgrounds.  Liv loves it.  They have a petting zoo.  🙂  Christian tolerates it, as long as he is riding in the wagon (which he is quickly outgrowing, especially if Olivia insists on riding in it with him).  It went fine.  Although, it’s really hard to maneuver a wagon in a crowded building.

Oh, and Christian decided to wake-up for the day at 3:30 (and, unfortunately, had only gone to bed around 11pm).  Thankfully, after the Ag Expo, Brian and Liv went back to take a nap and Christian was willing to lay down with me on the couch.  We were both sleeping within 5 minutes.  It’s the first time in a LONG time that he has taken a nap.  I’m SO glad that he did!  🙂

After supper last night, we headed over to my in-law’s church where they were having a Spring Blast.  They had events going on all day, but we were trying to catch the tail end of a concert and then the fireworks.  The concert was FANTASTIC!!!  The band Koine was playing.  Wow!  The awesomest (I know, NOT a real word) thing that happened was just watching Christian.  He immediately started dancing.  His dancing.  And he closed his eyes.  You could tell that he was just ABSORBING the music.  It was absolutely beautiful!  🙂  (I have to say that my eyes teared up a couple of times.)  He still did try (and succeed a few times) in running away and around and even once up front by the band eyeing up a banjo, but it was just so incredible to watch how the music of the hymns brought to life just moved him!  🙂

Christian and Olivia also LOVED the fireworks.  🙂  I could hear Christian say, “Fireworks!  I love!”  🙂  It was a really good show. 

Christian was pretty wound up, though, when we got home.  Between the music, fireworks, and his nap, he wasn’t able to fall asleep until after 11pm, but he stayed asleep through the night, so I have no complaints! 😉

What a week…

… Christian has a UTI.  A bad one and the start of an ear infection.  😦

He had his antibiotic shot.  😦  But should be feeling better by Noon tomorrow.  🙂  Which is great because we have Christmas with Brian’s family tomorrow night.

Now to see what our weather does…

Christian is recovering pretty well from his duel ear infections and lung junk.  His cough still remains, but that is about it.  Well, except that we have had some regression in pooing issues.  Pooing issues that we haven’t seen in YEARS.  Pooing in the pants.  Why???  Could this possibly be related to his antibiotic shot from last Wednesday?  The first time it happened the poo was softer, which tends to happen to him with antibiotics.  I didn’t think much of it.  But then it happened on Monday afternoon.  And last night.  Huh.  I am doing my best to try and piece this mystery together.  Why is this happening all of the sudden?  (Even before he was potty-trained, Christian couldn’t stand the feel of poo in his pants and would undress before pooing (leaving a “surprise” on the floor of whatever room he had been in).  So this is highly unusual for us!)  I’m wondering if the antibiotics are no longer making his poo soft, but still making it come quickly before he can get to the toilet???  Perhaps?  Has anyone else been through this after their child had an antibiotic treatment?  I’m just trying to grasp what’s going on, so that I can be aware and possibly prevent it from happening again…

Oh, and then there are the MAJOR sensory issues we have been going through again.  Even MORE than normal.  Running while shaking his head.  Extreme crashing.  Extreme climbing.  Extreme need for heavy pressure.  I am looking forward to the sensory issues getting more back to our regular “routine.”  Although, I have found that my elastic headbands are working REALLY well to give Christian the constant head pressure that he is seeking!  Hurray for a simple solution!  🙂

And then there is the bus.  Christian vomited on the bus again this morning.  So, again, I was called to pick him up from school as soon as he got there.  Sigh.  I’m starting to wonder if his trip is just too long for him when he is having respiratory problems???  He is PERFECTLY fine now.  Running and eating and dancing and singing and jumping like normal.  He is still coughing, so my thought is that he coughed up some “junk” and then gagged and threw up.  And I’m guessing his gag reflex is activated a little easier on the bus because of his positioning with his harness.  Hmm… so, do I keep sending him on the bus when he is having respiratory issues or just drive him to school and know that he’ll be just fine?!?  (I will probably have to drive him in tomorrow as they will still sanitizing his harness.)

So, today, I’m playing detective.  Trying to get to the bottom of all of these issues.   (At least the sleep has been pretty good.  😉  )

Christian is actually sick now.  😦

Sunday morning, he woke-up with a fever at 4:45 (stupid daylight’s savings changes).  (He felt hot, although we never got his temp to see how “hot” he was.)  He was napping by 8am.  (Um, totally NOT normal!!!)  Brian stayed home with him while Olivia and I went to LARB’s baptism.  (Brian was also a godfather.)  I guess Christian laid around, not wanting to eat or drink until 1pm-ish, at which point he then ate some toast and pretzels and drank some water.  When I got home, he curled up on me and slept some more and snuggled on the couch.  I started cancelling therapy, school, and the bus for Monday.  Boom — 7pm — Christian got up and ran downstairs.  He was running and playing with the DVD player.  Yep, his fever had broken.  He seemed back to normal to me…

…but because the fever had lasted so late into the evening, I kept him home on Monday.  He seemed perfectly fine all day.  I cancelled the bus on Tuesday to keep an eye on his cough for an extra hour, which subsided after he was awake for a 1/2-hour, so I took him to school.  Miss JB called me at 1pm and told me that Christian looked like he was going to fall asleep on the table and asked if I wanted to pick him up a little early since he had 4 hours of therapy after school.  So, I picked him up 30-minutes early.  They told me that he had a really good day, but that he was very quiet (whispering answers/noises) and inactive.  SO not him!  He didn’t nap (of course) once we got home, but was extremely quiet and not moving at the speed-of-light like normal.  He fought the sleep as long as he could, but fell asleep around 6:15 while AB was here.  So tired.  (And since he had fallen asleep SO early, he woke at 11:45 and was up until 4am.  Then he napped until 6 before he was up for the day.)

I was starting to put the clues together by this time — quiet, slow-moving Christian is NOT a healthy Christian — so what was wrong???  I was thinking ears — ear infection(s) because he was SO quiet.  (I know that when I had my ear infection in the last year that my voice kind of echoed in my head when I talked, so maybe his voice was too loud for him??)  And then I was concerned about his cough.  It just didn’t sound good.

So, I kept him home today.  I finally got a 2pm appointment with the nurse practitioner.  She was very good and did his whole work-up on the floor with us because that was where Christian was the most comfortable.  (Although, he definitely did NOT want to be at the doctor’s office!!)  Yep, fluid in his ears, his glands were swollen, and he had a wheeze in his breathing.  Sigh.  Poor guy.  (At least she said that he is not contagious!!!)  She wanted him on antibiotics and since I canNOT get him to take oral meds that left us the only option of an antibiotic injection. 

Christian is surprisingly strong.  It took 3 nurses and myself wrestling him (on the floor, so that he wouldn’t fall off of the table) to give him the shot.  The nurses didn’t really want to do it, but I knew that was my only option to get him the full dose of medicine.  (I would have been wearing it otherwise.  Seriously.)

So, Christian will be home again tomorrow.  Perhaps with some therapy (as he is not contagious) depending on how tired he is.  I’m going to play Friday by ear.  We’ll see.  I just hope that he sleeps better tonight! 😉